who are

Luciano
Enrica
Matteo
Ruben

The photo of the month

Motocross Lodi
Teo News
Matteo
Photo Motocross
Video Cross

Novelty

12 years to the Unionlido
Ten years of association
the drummer
Video
judo in the Beach
trip in mountain
Drummer 2
battery wise 2006
battery wise 2007
battery wise 2008
Bicycle
Competition judo 2006

Group SW

Yahoo groups to exchange information and experiences
enroll yourself
you program pc
if you are looking for didactic programs for your child it visits this site www.ivana.it

Other

The Special Mother You you/he/she has ever happened to ask you as. ............ ......... by Erma Bombeck
Welcome in Holland of Emily Perl Kingsley
Video abc uses

a book to be read

The rare illnesses: histories of exceptional people 
WE AM ALONE
Margherita De Bac
Sperling and kupfer
 

I file Articles

Hopes for the future?
a different mind
Too many Geniuses
The cerebral anomalies of the syndrome of Williams
Friendly people too much
The press 17/11/2001
SW Her Sciences
Chiara Strong
Mental asymmetry
Virtuous Musicians
Notes Conference Milan 11_12_1998
Contacts
The GUESTBOOK signs
Email
 
Last updating:
29/11/2009
 
The Syndrome of Williams is a rare genetic condition that a child strikes every 15/20.000 newborns he Takes the name from the physician Neozelandese that, for first, it described her/it in the 1961 ....................
 
Why a site on the Syndrome of Williams? Because in 1996 after to our child Ruben was diagnosed the SW, we have looked for in internet information to respect and there are aware what in Italy there were no sites that spoke of the SW. This way we have thought about creating this site to try to help who as us it looks for information on the SW. Because the diagnosis it is not a point of arrival but you/he/she must be the first footstep toward an unknown path, a path that we must learn to know for being able to walk without the fear to fall . 
 
The birth of a child inevitably brings to I handed questions on his/her future, as will it be from great?as it will be the society in which must live? etc.;when a child is born "special "the same questions assume a great weight, because the questions do they transform him in as it will be from great Him with his/her problems? ,as it will be the society in which you/he/she must live Him with his problems? etc. He/she wonders us if it will be autonomous or it will always owe to depend on someone etc. I think that the answers not the has anybody, therefore it is useless I handed these questions but to wonder what I can do for my child today because tomorrow is able possession a best future.

The last photos

   
Rally Monza 2009

Ruben News

My history Essay of judo 
Wise of Battery 2008 the video                 
 Passage Of belt - Blue / Brown - May 2008
sport and SW Fare sport particularly sport what they develop ability visuospaziali and knowledge of his/her own body ,    my experience

Link judo

http://www.fijlkam.it/                

http://www.sport-educazione.it/

Curious sites
    www.fieggen.com/shoelace/lacingmethods.htm
The knots to the drawstrings of the shoes won't have anymore secrets!
 - In English -

Last Updatings

Adjourned: site
04/03/2009
Adjourned: photographic album
23/08/2008
last do I articulate Hopes for the future?
07/12/2008
Butterflies Thanks
 A child it is a butterfly in the wind, some aloft others fly less but all have the right to fly more aloft what they are able, some are yellow, some are red but all are very beautiful  A thanks detail goes to all the people that contribute with their presence, their job. their affection to push Ruben toward distant finishing lines more and more.
Unionlido Danila
 From 1996 every year we vacation in I camp all' unionlido
  12 years of photo
The Blog of Danila, our dear friend and special person indeed
Clicca Qui
Montefiorino 2007 The Passions
July
Vacation autonomy
A Regard to all the friends that have participated
The boys with sw often show an intense interest for determined objects and matters , as, the automobiles, the trucks, the tractors , the trains, the bugs. ......  etc). It is able difficult being at times to dissuade them from such matters. This passion absorbs them for a lot of time. Therefore you/he/she can reveal  positive to use this passions of theirs as matter and stimulus of learning. Ruben it is for example applied very more before to a monthly of tuning calculating prices performances and cv that before to a book of mathematics.
They launch
Thanks to Andrew we have spent a splendid day in the world of the motor
Music and Williams Financial 2008 5X1000
LENHOFF GLORIFIES
 it has a repertoire of over 2.000 songs and you/he/she has effected turnè overseas and in the United States.  -Visit-
The financial law 2008 have confirmed the possibility to devolve 5 for thousand of the support IRPEF of the volontariato, of the devoted non gainful organizations to services of social utility and to the scientific search
 96326740584 are the number Dell
' AISW
Pollicino
Site Web devoted to promote the singer Meghan Finn, quoted often as "the pop one star" of the Community of the syndrome of Williams.
- visit -
a different mind
from: The Sciences N° 34 10/2007
Pollicino it is an initiative from the Italian Federation Rare illnesses we Unite FIMR Onlus.
Site of the Berkshire Hills Music Academy, one specialized school for musicians with syndrome of Williams
- visit -
News and appointments Lombardy
Appointments, meetings, news region Lombardy  you monthly adjourn
It enters
WS and youtube Sites Friends
On Youtube, famous site of sharing Video it is possible to find tapes on the SW we have created a list clicca here
 
How's Your News
MTV sends in wave in the Usa an experimental series,  interesting and amusing call How's Your News?.it is a window of mezz'ora conducted by reporters  with disabilità (three boys with SW ),they turn for the country interviewing personagi famous and political Americans. IT FOLLOWS
   Roby and Manu
turistinonpercaso
Trips you serve as you and splendid photos

 

Excursions Lombardy
   Mike and Ruby
bikers canadel met in a camping of Mandello to the beginning of their trip 2008



autosanvito.com
 
Mother Enrica Facebook

Ruben
Facebook
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